
Out of respect for your ever-filling inboxes, we now publish the WBP
news update bimonthly. Attached you will find the October/November
report, briefly highlighting the last 60 days' activities and
describing how you can help. Please email us with your questions,
comments, and suggestions, and of course feel free to forward this to
your interested friends and colleagues.
Founder Kathryn Hinsch has been asked to participate in an
invitation-only conference on human germline genetic modification
(a.k.a. "designer babies") sponsored by the Genetics and Public Policy
Center at Johns Hopkins University. The conference, which will be held
in mid-December in Washington, DC, will bring together experts in
science, ethics, law, and theology to provide feedback and input on
policy options around germline engineering. Participants include such
luminaries as Kathy Hudson, Francis Fukuyama, and Eric Juengst. Just
six months after its inception, WBP is playing at a national policy
level.
Our strategic plan (see the "Advisory Board" item below)
must rest on a thorough understanding of how bioethical public policy
is currently being developed. To this end, we have analyzed three
groups: broad-based bioethics organizations, policy research institutes
that focus on specific issues, and the media. To date we have studied
two of the most important groups in bioethics, The Hastings Center and
the American Society for Bioethics and Humanities (ASBH).
The Hastings Center is the world's first bioethics research
institute. Located in upstate New York, the Center was founded in 1969
to explore fundamental and emerging questions in health care,
biotechnology, and the environment. Kathryn and University of
Washington bioethicist Kelly Fryer-Edwards spent a day at the Hastings
Center, where they were welcomed by the Center's President, Tom Murray,
PhD. Tom and the Center's scholars and staff shared their ideas and
history and offered insights on organizational approaches and their
approach to influencing public policy. We also discussed ways in which
WBP and the Center, having complementary missions and constituencies,
may be able to work together in the future.
The American Society for Bioethics and Humanities (ASBH) is a
professional society of more than 1,500 individuals, organizations, and
institutions interested in bioethics and humanities. WBP attended this
year's annual ASBH meeting in Philadelphia in October, where it was the
only think tank represented in the ASBH exhibit hall. Leon Kass, MD,
PhD, Chair of the President's Commission on Bioethics, gave a keynote
speech on bioethics and public policy, providing valuable insights into
the current administration's philosophical approach. While at ASBH we
announced the newly developed "WBP Scholar Promotion Program", which
will provide media training, editorial support, and other services to
help selected scholars - who support the WBP mission - reach a larger
audience with their work.
In addition, we have recently been in discussions with the Center for
Genetics and Society (CGS), an organization which encourages
responsible uses of the new human genetic and reproductive
technologies.
The next phase of our review will examine research
institutes and advocacy groups that focus issues affecting the lives of
women. During her trip to Washington, DC, Kathryn will meet with the
leaders of the Center for Women Policy Studies, the Institute for
Women's Policy Research, the Society for Women's Health Research, and
the Alliance for Aging Research.
In parallel with our group studies, WBP volunteer Cheryl
Stumbo is analyzing national and local media coverage of bioethical
issues. Cheryl's public relations and marketing expertise will help us
determine the positioning of these issues (e.g., as human-interest
stories, as biotech business news, or as science stories), identify the
media outlets and reporters currently covering them. This information
will allow us to develop the media outreach portion of the strategic
plan.
Public education vitally complements policy development. To
that end, we are addressing as many groups as possible. Kathryn's
recent speaking engagements include a talk for the local Wellesley
alumnae chapter, a keynote speech at Forest Ridge School of the Sacred
Heart's career day, and a presentation to graduate students in the
public health program at the University of Washington.
In addition, we have hosted a number of in-home meetings with
various groups of WBP supporters, discussing the role of different
spiritual traditions and communities within WBP; the exclusion and
under-representation of women in medical research; finding appropriate
communications vehicles to reach different audiences, such as women
living in rural areas; surrogate mothers for hire; and the potential
implications for women of public policy regarding physician-assisted
suicide.
At the end of November, we announced the formation of our
Advisory Board. Comprising prominent scientists, scholars, attorneys,
and business leaders, the Advisory Board will provide guidance and
advice on fundraising, organizational development, and strategy. The
board will meet on December 5 for an all day strategic planning
meeting, yielding our final three-year plan.
For more information about the Advisory Board and biographies of its members, click here.
Recognizing the potential of the WBP website as a tool for outreach, community
building, education, and collaboration, we have begun a comprehensive
redesign of the entire site. Scheduled for release in early February,
the new site will feature a new look and feel, online advocacy tools,
and educational resources. Until then, we have enhanced the existing
web site by adding an online donation tool for secure, tax-deductible
donations.
1. | Do you know of a speaking opportunity for WBP? Please invite us to speak at your group. |
2. | Have skills in marketing, research, fundraising or event planning? Please volunteer. |
3. | If you share our vision, please consider a donation. Raising funds
locally demonstrates local support, which is necessary in order to
approach national foundations. Click here to donate now. |
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