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UNESCO Develops Universal Norms in Bioethics, Women Under-Represented

SEATTLE,  January 28, 2005— Today, the United Nations Educational, Scientific and Cultural Organization (UNESCO) International Bioethics Committee (IBC) is meeting in Paris to set international standards on bioethics. While these standards have the potential to enhance the health and well-being of all people, the committee membership is almost exclusively male. Representing more than half the global population, a disproportionate number of the world’s vulnerable people, and the traditional caregivers of all generations, women have a special stake in bioethical issues.

The IBC is composed of 36 bioethics experts, each from a different country, appointed by the UNESCO Director-General. Alarmingly, 80 percent of the committee members are men. The sole expert from the U.S. is a male conservative Catholic physician. UNESCO, which has long described itself as the “moral conscience” of the U.N., has an established pattern of giving limited airtime to women’s perspectives in its ethics policy proceedings.

“While the committee surely intends no harm to women, men cannot represent the entire range of human experience. The notion that a universal set of bioethical norms endorsed by the nations of the world will be the product of a male-dominated process is absurd,” notes Kathryn Hinsch, founder of the Women’s Bioethics Project, a Seattle-based think tank. “Although the current IBC draft Declaration on Universal Norms on Bioethics does not overtly discriminate against women, it does not reflect the disproportionate ways in which bioethical issues affect women, and thus discriminates by omission.”

Hinsch continues, “The draft declaration ignores the realities of women’s lives. It is most often women who take care of the young, the old, and the sick of the world. Relative to men, women are politically disenfranchised and economically dependent. Women’s access to healthcare, including prenatal care, is subject to outside control in a way that men’s is not. History shows that women’s participation in the political process is what brings such issues to light. It is therefore vital that more women have a place at the IBC table.”

According to Dr. Mary C. Rawlinson, a philosopher from Stony Brook University who is observing the bioethics sessions in Paris, “Gender continues to be ignored in bioethics. In developing a statement of human rights, one can’t just extrapolate from male experience. Thinking about the specificities of women’s lives would lead to a more complete articulation of human rights.”

Dr. Dafna Feinholz, of Mexico’s National Commission of Bioethics, comments, “Gender is not a special-interest category. It is a very sensible indicator and one that summarizes many other inequities (e.g., 70 percent of the world’s poor are women, and the highest rates of illiteracy are among women). When gender inequities are addressed, many other inequities are addressed as well.”

Bioethics can no longer be dismissed as the stuff of science fiction. Debate about bioethical questions is under way in academia, in the political arena, and within religious communities. Policy makers and voters are addressing bioethics questions when they consider whether to fund stem-cell research. Courts are facing bioethics questions when they consider which of three “parents”—an egg donor, a gestational mother, and a social mother—should receive custody of a child. The media cover these issues with emotionally charged, ideologically driven sound bites that fail to educate the public. Meanwhile, despite the clamor in nearly every one of these settings, women’s voices are under-represented.

New discoveries in genetics, pharmacology, and assisted reproductive technologies will soon allow us to modify ourselves and our children in ways never before possible. With these advances come profound questions about what it means to be human and what kind of future world we want to live in. Hinsch notes, “Without a voice in shaping the legislation and policies that affect their lives, women will have to contest potentially dire consequences after the fact. We must be vigilant about creating policies that are thoughtfully drafted by—and for—all people.”

 
   
 
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